RAWLINS, Wyoming — Ten years ago, Kim Motschenbacher went in for her annual mammogram. It came back negative. Even though it did not feel like a lump, pain in her left breast caused her to go back to her doctor. Two months after her original mammogram, Kim was diagnosed with lobular breast cancer, also called invasive lobular carcinoma (ILC). The diagnosis was Stage 3C.
In February 2011, Kim underwent a 4-hour surgery where surgeons performed a bilateral, double mastectomy. They removed a 6-centimeter mass and 22 lymph nodes, 10 of which came back positive.
"This was really frustrating and maddening to me that none of this showed up on my mammogram. But what we've come to learn about lobular breast cancer is that it does grow in a single-file pattern. It doesn't show up as a lump and the mammogram doesn't always detect lobular breast cancer," Kim explained.
According to Lobular Breast Cancer Alliance, ILC is the sixth most frequently diagnosed cancer of women in the U.S. with nearly 44,000 new patients diagnosed each year.
"Every person we talk to, no one has heard of lobular breast cancer. Although I have lost one friend and a sister of a friend in the last year to lobular breast cancer because it was diagnosed in later stages," Kim said.
To mark 10 years cancer-free, Kim and her husband John Motschenbacher are biking across America while raising awareness of ILC. Their goal is to raise $100,000 for Lobular Breast Cancer Alliance in order to advance research that can hopefully help in detecting this type of cancer earlier.
"So happy to be here and doing this bike ride and yeah, 10 years... there was a stretch where I didn't think I was going to make it. I mean Stage 3, that's almost Stage 4 and so... I feel like I'm a miracle in a sense," Kim said.
The couple, from the Chanhassen/Chaska area, left Minnesota in the end of May. They're taking the TransAmerica Bicycle Trail and started May 26 from Astoria, Oregon. More than 40 days into their trip, the couple arrived in Riverside, Wyoming on Tuesday after biking 60 miles for the day.
"The highlight is really meeting the people along the way. Locals, folks from all over the world, that we've met and spoken with and some people that have gone on this cancer journey, as well," John said.
By early September, they plan to end the trip in Yorktown, Virginia.
"Hopefully we're inspiring other people to get out there and enjoy life," John said.